Sheehan’s Syndrome Support Groups and Resources

Sheehan’s Syndrome Support Groups and Resources

Sheehan’s Syndrome/ Hypopituitary Support Organizations

HypoGal Support Groups

You can click, HERE, to see a Photo of the Pituitary Gland. 

Pituitary Network Association

P.O. Box 1958 Thousand Oaks, CA 91358

(805) 499-9973 Phone (805) 480-0633 Fax

Email: info@pituitary.org

The Pituitary Network Association has a list of several states where you can find Pituitary Gland Support Groups.

Click, HERE, to be taken to the Pituitary Network Association List of Support Groups. 

 

Pituitary Foundation

PO Box 1944 Bristol

BS99 2UB United Kingdom

Phone: (845) 450-0376  Toll-free: (845) 450-0375

Email: helpline@pituitary.org.uk

Website: http://www.pituitary.org.uk

 

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126 Gaithersburg, MD 20898-8126

Phone: (301) 251-4925  Toll-free: (888) 205-2311

Website: http://rarediseases.info.nih.gov/GARD/

 

Hormone Health Network Endocrine Society

2055 L Street NW Suite 600 Washington, DC 20036

Phone: (202) 971-3636 Toll-free: (888) 363-6274

Email: hormone@endocrine.org

Website: http://www.hormone.org/

 

The Hormone Health Network 

For general feedback about The Hormone Health Network programs and services, Please Email: hormone@endocrine.org

For phone inquiries, please call 1-800-HORMONE.

Website: http://www.hormone.org/

 

NIH/National Institute of Diabetes, Digestive & Kidney Diseases

Office of Communications & Public Liaison Bldg 31

Bethesda, MD 20892-2560

Phone: (301) 496-3583

Email: NDDIC@info.niddk.nih.gov

Website: http://www2.niddk.nih.gov/ Where To Find Clinical Trials

You can find current government clinical trials at https://www.clinicaltrials.gov

These clinical trials receive funding from the United States government and some resources from private industry.

You can find out about available clinical trials being conducted at the NIH Clinical Center in Bethesda, MD by contacting the NIH Patient Recruitment Office:

Tollfree: (800) 411-1222 

Email: prpl@cc.nih.gov

For information about clinical trials sponsored by private sources, contact: www.centerwatch.com

Australian Pituitary Foundation 

Mail PO Box 570, Mt Ommaney QLD 4074, PO Box 105 Kellyville NSW 2155

Phone 1300 331 807

Website: http://pituitary.asn.au/

 

If you are aware of other Pituitary Organizations that offer support programs can you please email me their contact information. My email address is Lisa@HypoGal.com.

You can read about my HypoGal medical journey with Sheehan’s Syndrome, HERE.

This link will take you to HypoGal Sheehan’s Symptoms Page.

Click, “HERE”, if you would like to view my Pituitary Gland Medication List. 

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You can read about Shortcuts To Living With A Chronic Illness at HypoGalBlog.

 

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